Acute Leukemia Advocates Network
The Acute Leukemia Advocates Network (ALAN) is a global network of patient organizations and advocates dedicated to improving the lives of people affected by acute leukemia. ALAN empowers national groups by offering education, advocacy tools, and opportunities for collaboration.
Its key goals include:
- Supporting advocacy and awareness efforts,
- Improving access to information and care,
- Strengthening patient communities,
- Collaborating on research and policy.
How ALAN Works
- ALAN is not directly patient‑facing, but acts as a network of organisations. It builds capacity in its member organisations so that they can deliver more effective, tailored services at the national level.
- Members are nonprofit patient organisations with a full or partial focus on acute leukemia. They apply and are approved by the Steering Committee.
- ALAN maintains a Code of Conduct & Ethical Framework to ensure collaboration is conducted with integrity, respect, and credibility.
Steering Committee
The Steering Committee is the governing, non‑executive body that oversees ALAN’s direction, makes strategic decisions, and ensures that its goals are met. It includes experienced patient advocates from across the globe.
As of the most recent update, the members include:
- Jan Geissler (Chair and LEPAF trustee)
- Sophie Wintrich
- Cheryl Petruk
- Elo Mapelu
- Catherine Moura
- Marine Tullet
- Pasusant Wattanaboonya
- Gereon Mänzel
- Charles McGrath
- Samantha Nier serves as Network Director
For more information, please visit the Acute Leukemia Advocates Network website.